Our family had a fantastic Easter.  The weather was beautiful and the food was even better. What was so great about this weekend was definitely watching the kids hunt eggs. I love to watch their little faces light up every time they find one.  

The main reason for my post today is to brag about Levi’s energy levels.  This kid has been on the go, non-stop.  Friday, after school, he ran around the yard playing for at least an hour straight.  He was running at a faster pace than normal and we noticed his gait was much more normal.  Then, our daughter, grabs the volleyball to throw it to Levi, and he catches it! We were so shocked we both started applauding him.  He hasn’t caught a ball in as long as I can remember.  This may not seem huge to most people but if you have a child with DMD, you know what these little things mean.  

Not only has his energy level been sky high, he has been so playful and funny lately.  He’s cracking jokes and being a normal gross boy and WE LOVE IT!  We have seen a definite change in Levi this week.  It’s been about two weeks on the new path for the Vecttor and I can say it is working. 

The best thing is that Levi is trying to do things that he wasn’t trying to do anymore. We’ve noticed that he is pushing himself harder and really trying to see what his body will do.  It’s almost like watching him as a toddler all over again. 

The last two weeks have been a huge WIN for Levi in his fight against Duchenne and we couldn’t be happier to watch our son flourish in the face of adversity.  Image


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