Bumps in the road

So here we are, July 22nd.  I was hoping to have a lot more time on the complete regimen under our belt now, but due to some financial hiccups and having to move, we fell off track for a few weeks.  Even so, Levi has still been doing really well. We have been eating as close to the diet as possible, we just ran into a lapse in being able to also afford the supplements.  I’m happy to say we are back on our feet now and Levi has been back on the gluten free diet (we also use the Youngevity Good Food/Bad Food list for other diet restrictions, they are recommended for maximum vitamin absorption) and Levi also still uses his Vecttor machine, daily.  We also use the Ultimate Selenium (from Youngevity), EFA Plus capsules (Youngevity), FuciodZ (Youngevity), and the a bone support drink (Youngevity) He also drinks a plant based protein drink from Youngevity that has 90 nutrients, amino acids, probiotics and more.  I choose these products because I feel they are quality-made and a better quality than what I can find in a normal grocery store.  I was buying a lot more supplements at a local homeopathic store but they were more expensive and I felt like my son was having to take too many pills throughout the day.  With the youngevity products, we get all the same vitamin regimen but not as many in pillform.  The diet has been pretty easy to follow.  We’ve had a few snags here and there with getting Levi to try more veggies and things like that but all in all he has been eating just about anything I make for him.   We have been back on this regimen for almost three weeks now, this time.  God closed some doors in our life but he has opened some and I’m happy to walk through them and continue on this journey.  I have prayed for an answer and a better way to care for my sons Duchenne Muscular Dystrophy and I am confident that this is the path I’m being led on.  For whatever reason, I feel it in my heart that Levi is feeling better and doing better because we have been brave enough to think outside of the box. It’s scary at times to be doing something, not many other parents are doing but I feel pride at the same time that my son is in such good shape. I can’t wait to share some more pictures and video with you. I’ve got a ton of them to go through and edit some before and after comparison videos.  I hope to start posting weekly updates again with new video each time.  Please follow Levi’s progress with us!  If you have any questions about Levi’s regimen that is helping him reverse symptoms of Duchenne Muscular Dystrophy, feel free to contact me.  

When life gets in the way of living…

I want to first apologize for my lack of update.  Our life has been a bit hectic to say the least, but instead of giving you a 5 hour story about how crappy my world is right now, I will skip straight to some updates on Levi.  He is still doing well walking, getting up from a seated position unassisted, and I am happy to report that he hasn’t fallen in WEEKS! Yup, you read that right. WEEKS. Before starting Youngevity Levi was falling multiple times a day.  It has gradually gotten better since March and I am just so thrilled that he doesn’t walk around waiting to fall.  His digestion problems are almost non existent.  Since he was a baby, Levi never had regular digestion. He would go days without having a bowel movement.  Now things are smooth sailing and he is able to go to the bathroom with ease and does at least once a day. His sleep patterns are great. He sleeps about 10-12 hours a night (compared to 2 or 3 hours at a time before).  I do think that the Vecttor helps a lot with his sleep and helping keep his muscles soft, as well. We still run the Vecttor machine twice a day along with the supplements and gluten free diet.  I wish I could report that Levi was running through the streets and completely cured….but sadly that is not the case.  What I am seeing is a gradual healing of some of his worst symptoms and I feel that, at the very least, this regimen has bought us some much needed time.  We chose to go the natural route, on a gut feeling, and I feel that seeing how well he is doing solidifies my decision.  It’s hard to make life decisions for your children, especially dealing with a terminal illness, but I can honestly say that when my son is old enough to understand why I chose this route and that I didn’t compound his disease by adding more awful side effects, he will be grateful.  I have some more video’s to post soon. I’ve got tons of footage to edit to share with you all.  Thanks for taking the time to read my blog.  I’ve been getting a lot of feedback and I love hearing from each and every one of you.  Ok, off to edit some footage while I listen to an Oklahoma thunderstorm brewing. Take care!

Week 4 update!

I’m a little behind posting this update to my blog but better late than never, right?  I took the first clip on Levi’s second week of the Defying MD protocol from Youngevity.  The second clip was taken on week 4.  You can see a noticeable difference in his ability to stand on one leg.  Levi has also been getting off of the couch, now, without assistance. Our couch is soft leather and very low to the ground and he hadn’t been able to get up by himself from the couch for months.  My next video will include that footage and hopefully some more improvements as well. We are still very hopeful and seeing a lot of good things happening since we decided to adapt this lifestyle change.  Food and supplements are important ya’ll! 🙂

https://www.youtube.com/watch?v=R2fraqwOZZ0

 

 

Week 3 Youngevity Update

Here we are! Week 3 and things are still going really good.  This week I have some pictures, mainly for future comparison purposes, of Levi’s posture and the way his heels look when standing.  He has been a ‘toe walker’ for a couple of years now and the difference is pretty noticeable.  He had gotten to where his heels would be about 2-3 inches off the ground when standing and his balance was very poor.  If you’ll notice in the pictures, he is obviously experiencing some form of release from his contractures.

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Here is a view of his back —–>

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                                WEEK 2                                                                                WEEK 3

And a view from the side —->

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                                  WEEK 2                                                                     WEEK 3

Overall, Levi is still doing good. Things seem to be moving in a hopeful direction and we are looking forward to see what else happens for him.  The video I posted last week has started circulating.  We have 103 views already so be and sure and share with anyone who is affected by Muscular Dystrophy.  

 

 

 

Video Update #1- Defying Muscular Dystrophy – Duchenne

Here we are! Two weeks in and feeling good about our decision to start Levi on Youngevity.  If you have followed my blog for a while you know that Levi has been using the Vecttor since June of 2012.  I feel like it made a difference and has kept him mobile for the last two years.  Even with the Vecttor, though, we were still seeing a decline and the normal progression of the monster that is Duchenne.  So, my research gears starting turning in my brain and I decided to try something that had been nagging at me a while.  Todd Harrison from Defying MD has made some amazing improvements and actually has reversed symptoms of Becker’s MD.   Something kept telling me to just try it.  I went with my gut on the Vecttor and I know it my heart it did Levi a lot of good and still is.  So the decision was made and we jumped in.  We have all been following the Good Food/Bad Food list from Youngevity and taking the Beyond Tangy Tangerine 2.0.  Levi takes the BTT 2.0 plus the Ultimate Selenium, EFA Plus, FucoidZ, and Osteo-FX.  Gluten Free is not as hard as you would think and the kids have been amazing at trying new things. 

Now, onto the video!  Let me give you a little background on what you are about to see.  About two months ago, Levi lost the ability to get out of a seated position by himself.  He would ask for help every time he needed to get up.  On March 7th, just one week into our Youngevity trial, Levi surprised my daughter and I when he got up out of his chair at the dining table almost HANDS FREE!  Even when he still had the ability to get up unassisted he would use his hands to climb up his legs, then put his hand on the table to assist him the rest of the way. To go from needing full assistance (just two weeks ago) to what he can do now is a huge sign that we are doing something right.  I am so pleased to share this video with the DMD community.  I hope that it settles some of the debate over whether this is a worthwhile treatment or not.

Announcement Coming Soon!

I have to say that I didn’t think I would be reporting any improvements just two weeks into our trial of the Defying MD Protocol but we are seeing some amazing things! I’ll be releasing Levi’s first video documentation in the next few days showing him doing something that he had lost the ability to do.  If you don’t know much about Duchenne, abilities are rarely gained back after they have been lost.  With the help of Youngevity and following a special diet, it seems that Levi is improving before our very eyes.  I don’t know how much improvement we can expect in the next 90 days but if this is happening in just two weeks I cannot wait to see what abilities he will gain back.  I don’t want to put the cart in front of the horse or get my hopes up but something very special is happening to my son.  I can feel it in my soul and I can see the look of hope and satisfaction on his face.  He feels different and he is trying more things because he can feel the change that is taking place within his body. 

I can’t wait to show you what is happening in my son’s life.  I will post the video in a few days!

 

 

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One Week In

So the whole family has been on the 90 Day Youngevity Challenge for one week now. We’ve been following the diet guidelines and taking all of stuff daily.  Everyone has noticed a boost in energy.  My daughter’s ‘allergy shiners’ are gone from her eyes.  My husband (who has some sort of auto immune disease which is still undiagnosed) has felt more energy and it helped him bounce back faster from a bad flare up.  Levi has been more energetic and more physical. He’s really been playing guns in the house the last couple of days. He will run back and forth for a couple hours before he decides to take a break. I’ve noticed his balance is better. He is also getting up from chairs and the couch without requesting our help which is something he hasn’t been able to do in a couple of months. His heels are also closer to the ground. He had really been toe walking bad over the last couple of months and it looks like his contractures in his ankles are starting to ease up a bit.  I know it’s only been a week and I wasn’t expecting to see any results this fast but I feel really good about seeing some results already.  I just wanted to share the good news. I am happy, so far, with the Youngevity products. Myself, my husband and my daughter are taking just the Tangy Tangerine powder supplement but Levi is taking the powder as well as, EFA Plus, Ultimate Selenium, FucoidZ, and Beyond Osteo-FX (Defying MD Protocol). Also we haven’t run his Vecttor in 4 days and he still showed all these improvements. I stopped the Vecttor for now to run a good trial on just using the vitamins.  Looks like it isn’t affecting him too much since he’s actually gained some abilities back this week.  Looks promising for now! I’ll update more next week.

Here is an example of one of the meals we had for dinner this past week (Following the Good Food/Bad Food List):

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The kids loved this one. (yes, even with the asparagus and carrots!) I cooked the catfish in the skillet with a little bit of butter, and also brushed a little butter on the asparagus and carrots, added salt and pepper then popped them in the oven for about 10 minutes until they were crispy.

We didn’t have any red meat this week. I stuck to chicken and fish. I’m gonna try to limit our red meat intake to about 3 or 4 times a month.  The kids are doing great trying all the new fruits and veggies.  I did have them a little in line since we’ve been eating healthier for about a year now but we are being more strict with food now and sometimes it takes a little convincing but they really are good to try everything and they usually end up liking it.  I’ll start posting more of my recipes so you can see if your family would enjoy these types of meals.

Thanks for reading and I look forward to see what the next few days bring!